Julie & Tyler, Elliott keeps us updated weekly on Gavin. Such a great video on Gavin, thank you for sharing it! The LIttle Gasparilla pictures are my favorite! We think of you all often and keep Gavin close or our hearts! Love, Eve
Julie - just sent you an email through YouTube, but saw you mentioned Shands and Gainesville, so I'm guessing you're in Florida. If so, the family I mentioned I met online who also has a child with the three illnesses that Gavin and my daughter have lives in Florida and I think may even go to Shands. You may know them, but if not, I can put you in touch. The girl is 5 too. Susan
Just came across this blog via Facebook. What an inspiration your young man is to the world.
I'm 35 years old and was diagnosed with JRA when I was 18 months old. It has now transferred to RA. Whilst I really don't know a different life and wouldn't change who it has made me today, there are days when life is really tough - but I'm talking to the converted here right?
Arthritis is such a lonely condition and very misunderstood in society. The pain is excruciating and it's a daily struggle of the mind. I have just had my second child - thankfully, after living on medication - and the pain has hit another level.
Gavin's blog makes me feel less alone and for that I'm truly grateful.
I am following your blog....my daughter, who just turned 8, was diagnosised with RA. It has been NO FUN for any of us. We are new to this "club" and I admire your family and strength
Hi Gavin and Family My name is Jenna and I came across your site. U are an amazing, courageous, strong and determiend fighter. U are a brave warrior, inspirational hero. I was born with a rare joint bone disease, and have been diagnosed with many more conditions. I love it when people sign my guestbook. www.miraclechamp.webs.com
Julie & Tyler,
ReplyDeleteElliott keeps us updated weekly on Gavin. Such a great video on Gavin, thank you for sharing it! The LIttle Gasparilla pictures are my favorite!
We think of you all often and keep Gavin close or our hearts! Love, Eve
Julie - just sent you an email through YouTube, but saw you mentioned Shands and Gainesville, so I'm guessing you're in Florida. If so, the family I mentioned I met online who also has a child with the three illnesses that Gavin and my daughter have lives in Florida and I think may even go to Shands. You may know them, but if not, I can put you in touch. The girl is 5 too.
ReplyDeleteSusan
Hi,
ReplyDeleteJust came across this blog via Facebook. What an inspiration your young man is to the world.
I'm 35 years old and was diagnosed with JRA when I was 18 months old. It has now transferred to RA. Whilst I really don't know a different life and wouldn't change who it has made me today, there are days when life is really tough - but I'm talking to the converted here right?
Arthritis is such a lonely condition and very misunderstood in society. The pain is excruciating and it's a daily struggle of the mind. I have just had my second child - thankfully, after living on medication - and the pain has hit another level.
Gavin's blog makes me feel less alone and for that I'm truly grateful.
Thank you,
Shan (Australia) xo
I am following your blog....my daughter, who just turned 8, was diagnosised with RA. It has been NO FUN for any of us. We are new to this "club" and I admire your family and strength
ReplyDeleteHi Gavin and Family
ReplyDeleteMy name is Jenna and I came across your site. U are an amazing, courageous, strong and determiend fighter. U are a brave warrior, inspirational hero. I was born with a rare joint bone disease, and have been diagnosed with many more conditions. I love it when people sign my guestbook. www.miraclechamp.webs.com